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Recently, while researching Irish history, I came across a commonly paraphrased quote of James Joyce that I’d forgotten: “Mistakes are the portals of discovery.” I think this resonates with me because living with myasthenia…
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Aiming to address a persistent gap in myasthenia gravis (MG) research, Vitaccess is teaming up with the Myasthenia Gravis Foundation of America (MGFA) to expand real-world data collection in MG. As part of the…
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Uplizna (inebilizumab), Amgen’s infusion therapy for adults with generalized myasthenia gravis (gMG) who are positive for antibodies targeting acetylcholine receptor (AChR) or muscle-specific kinase (MuSK), is now approved for use in the European…
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Opportunities often arise when we least expect them, as the saying goes. My twin brother, Aaron, recently told me that the frigid weather in New York City has given him a chance to return to…
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I love working. I love creating. I love staying active and leaving my mark on the world. But myasthenia gravis (MG) doesn’t always enjoy accompanying me on that path, so I had to come…
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Standard treatments helped many people with myasthenia gravis (MG) who lack the most common disease-causing antibodies, according to a new review study. The findings shed new light on how so-called double-seronegative MG (dSNMG)…
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Tofacitinib, an approved medication for some types of inflammatory arthritis and inflammatory bowel disease, improves muscle strength, daily functioning, and quality of life in people with hard-to-treat myasthenia gravis (MG), according to a small…
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A new digital platform — MyaLink — enables doctors to monitor the physical and mental health of people with myasthenia gravis (MG) in real time and communicate directly with patients through the app, a…
Jodi Enders and Jason Gray share how openness, compromise, and honest communication have helped them build a strong relationship while navigating life with myasthenia gravis. Read Enders’ column,…
Barry Stalker shares what it’s like balancing myasthenia gravis with a job that keeps him on his feet all day, and how he’s learned to “pick and choose…
Jasmine Nathan shares how she manages myasthenia gravis (MG) during the holidays by treating her energy like a budget, choosing only one or two meaningful activities, and being…
Mark Harrington talks about the frustration of MG fatigue and the freedom that came when he learned to slow down. With support from friends and mindful routines, he discovered how rest could become a form…
Joe Enders reflects on his daughter Jodi’s MG diagnosis, her independence, and the challenges of balancing support with giving space. He discusses the role of family and support groups in navigating remission, anxiety, and the…
Chloe Wigg shares her experience living with myasthenia gravis (MG), from facing isolation and setbacks in her art to creating the exhibition OMG! She reflects on resilience, the power of community, and how storytelling through…
Charlotte, a cardiology nurse living with myasthenia gravis (MG), shares how her diagnosis shaped her career and perspective on care. She reflects on the slow onset of symptoms, the challenges of nursing school, and the…
Yvette Bernal shares her journey with myasthenia gravis (MG), from the fear of early symptoms and ICU stays to navigating the realities of motherhood while managing a chronic illness. She reflects on honesty, connection, and…
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Becoming educated and informed about MG is a good first step. Learn general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your MG journey.
There is no cure for MG yet, but there are treatments that can help manage the disease. Learn more about approved and experimental therapeutic approaches here.
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